For the past four years, Justin Akin and a team of riders have been completing an annual fundraising and awareness ride, “700 Miles to Hope,” in support of the Cincinnati Children’s Hospital and their research of HLH.
What is HLH? HLH (Hemophagocytic Lymphohistiocytosis) is a rare disorder of the immune system primarily affecting young infants and children Although physicians have written about the disorder over the years, it has been only in the last few years that it has received more widespread attention. The prevalence of HLH is 1.2 in every 1,000,000 children.
The Matthew and Andrew Akin Foundation was founded by the parents of two young children who lost their lives to this disease much too soon. The mission of the foundation and “700 Miles to Hope” is to support the world-renowned experts at the HLH Center of Excellence at Cincinnati Children’s Hospital and their core priorities of research, education and family support.
This year, Abstrakt has the honor of teaming up with the Matthew and Andrew Akin Foundation to change the future and make a positive impact in the lives of those who are affected by HLH. We are committed to ride and raise money in this inspirational event, not only because of the impact HLH has on children and their families, but because we personally know some of them and want to do something about it.
Since we could not be with the team on the week of the event, we are riding in St. Louis. We will be riding the miles in our office, in support of this amazing group of individuals.
As a team, united in our desire to bring awareness to HLH, we are asking for your support. Please make a donation to our team or become one of us by joining our team. When we bring together dedicated team members and kind donors, the power we have as a group far outweighs what any of us could do alone.
We are determined to reach our team goal, one rider at a time. So let’s get in gear and ride 700 Miles to Hope!
If you are interested in participating in our Virtual Ride, please contact us at 314.338.8808 or donate here. For more information about the ride or the Matthew and Andrew Akin Foundation please visit their website www.matthewandandrew.org.